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NMDP Online Privacy Statement

The National Marrow Donor Program® (NMDP) is committed to respecting your privacy. We've structured this Web site (nmdpresearch.org) so that you can visit it without identifying yourself or revealing any personal information. If you choose to provide us personally identifiable information (any information by which you can be identified), you can be assured that it will only be used to support your relationship with the NMDP.

This statement regarding the privacy of the information you provide online covers seven main areas:


The National Marrow Donor Program provides this Online Privacy Statement to make you aware of our privacy policy and practices and of the choices you can make about the way your information is collected and used. To make this notice easy to find, we make it available on the home page and from the bottom of every page on this site.

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What We Collect

Web Statistics

As you browse through this Web site, the National Marrow Donor Program collects some non-personally identifiable data, such as:

  • The type of browser used to access the site
  • The date and time of your visit
  • The pages you visited
  • The address of the Web site that referred you if you clicked a link to get to this site

The NMDP collects this information for statistical purposes and for evaluating this Web site to make it more useful to visitors.

Personal Information

This Web site collects personally identifiable information only if you voluntarily submit it. The personal information collected on these pages is your name and contact information. In some cases, you may submit additional information as needed to complete your request.

We may also ask you to voluntarily provide us with information regarding your experience with cancer, personal or professional interests, demographics and contact preferences to tailor our subsequent communications with you and continuously improve our Web site and services.

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How We Use It

When you choose to submit personally identifiable information to the National Marrow Donor Program (NMDP), the NMDP uses your information only for the purposes for which you submitted the information.

Occasionally, we may also collect information for market research. At a minimum, we will always give you the opportunity to opt in -- or choose to participate -- before being contacted for market research purposes.

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Who We Share It With

The NMDP will not sell, rent or lease your personally identifiable information to others.

Unless we have your permission or are required by law, the personal data you provide the NMDP online will be shared only with other NMDP entities and/or business partners who are acting on our behalf to complete the activities described above. Such NMDP entities and/or business partners, including those located in other countries, are governed by our privacy policies with respect to the use of this data.

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The NMDP will not use or share the personally identifiable information provided to us online in ways unrelated to the ones described above without letting you know and offering you a choice.

Your permission is always secured first, should we ever share your information with third parties that are not acting on our behalf and governed by our privacy policy.

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The NMDP is committed to ensuring the security of your information. To prevent unauthorized access, maintain data accuracy and ensure the appropriate use of information, we have put in place appropriate physical, electronic and managerial procedures to safeguard and secure the information we collect online. This includes the use of Secure Socket Layer (SSL) software, which encrypts the information you submit to keep it secure during transmission.

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If you have comments or questions about our privacy policy, please send them to this e-mail address: .

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Phone: 612-627-5807, Fax: 612-627-5895, Email: [email protected]
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